European CMT Federation

Together we are stronger

Benvenuta AICMT!

A great welcome to the Italian association AICMT !

AICMT Onlus deals with CMT since 1999, undertaking several projects and dealt with the various aspects that affect the lives of people with CMT, supporting patients and their families.

To know more about AICMT visit our dedicated page on this site, or go directly to: http://www.aicmt.it

You can contact AICMT at: info@aicmt.it

Freephone: 800 180 437

EURORDIS Membership Meeting

As a member of EURORDIS, the European CMT Federation will take part at the next Membership Meeting that will take place in Bucharest from May 16th to May 18th. This will be an excellent networking opportunity to meet other patient advocated from around the world.

Willkommen CMT Austria!

The European CMT Federation  is glad to welcome CMT Austria!

CMT Austria was founded in 2003 and has currently about 200 members. They organise annual meetings that take place, each time, in a different federal state.

To know more about CMT Austria, visit our dedicated page on this site, or go directly to: http://www.cmt-austria.at

You can contact CMT Austria at: office@cmt-austria.at

Welcome ASOCIAȚIA CHARCOT MARIE TOOTH ROMÂNIA!

We are pleased to welcome in the European CMT Federation a new association from Romania!

Asociatia Charcot Marie Tooth Romania was founded in 2018 with the aim to improve the quality of life of people with Charcot Marie Tooth disease and their families by implementing national projects and programs.

To know more about the Romanian CMT Association, visit our dedicated page, or go directly to http://www.asociatiacmt.ro.

You can contact the Romanian CMT Association at: contact@asociatiacmt.ro

¡Gracias ASEM!

It has been a peasure for the European CMT Federation to take part in this interesting information day on CMT organized by ASEM, the Spanish neuromuscular diseases association.

Rare Barometer Voices Survey

EURORDIS-Rare Disease is carrying out the first European-wide survey on the impact of rare diseases on everyday life.

We invite you to participate and to support this survey by following this link: http://bit.ly/eurordis-survey

This global survey is available in 23 languages and it is open to anyone from any country in the world who is living with a rare disease, as well their family members and carers. It will help to provide an up-to-date insight into the unmet treatment needs of people living with a rare disease.

The survey will take around 10 minutes to complete, and it closes on Tuesday 30 April.

Pharnext’s press release on CMT in Paris

I this occasion, Professor  David R. Cornblath, expert  in peripheral neuropathies including CMT,and Professor of Neurology at Johns Hopkins University in Baltimore, Maryland, U.S.A., took a stock of the latest scientific and medical advances in CMT, from his diagnosis to the various available therapeutic options. This conference also was the opportunity for Pharnext’s management to come back on outcomes of SYNGILITY® (PXT3003), which is the result of Phase 3 pivotal clinic trial on CMT1A disease treatment.

https://www.pharnext.com/images/2019.02.20_CMT_Event_FR.pdf?fbclid=IwAR2dvKf7fZzD8BhEConhEtCguGdZVT462CDBodCDmA24mJKpJSRFi7gCzAI

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