The European Charcot-Marie-Tooth (aka CMT) Federation is a nonprofit organization created to unite all the CMT advocacy groups across Europe to help raise awareness and promote better care for people with Charcot-Marie-Tooth disease, a rare invalidating neuropathy, fund research and encourage the formation of new organizations in countries where there is not an advocacy group yet
Welcome to the ECMTF
What is ECMTF?
The Federation advocates Europe-wide for CMT – or Charcot-Marie-Tooth disease is a rare neurological condition affecting the nerves to the arms and legs. The nerves deteriorate causing muscle wasting and weakness of the lower legs/feet and lower arms/hands, mainly, leading to varying degrees of disability.
Find out more about CMT.
Do you have CMT?
The French company Pharnext, CMT scientific experts, and international patient advocacy organizations (PAOs) have partnered to study the impact of CMT on patients’ daily lives. The result of that partnership is the CMT&Me study, which Pharnext is sponsoring over two years in six countries: the US, UK, Germany, France, Italy and Spain. The aim of the study is to collect real time data directly from patients, who describe what it is like to live with CMT. The study also aims to find out how treatment can improve patient quality of life and slow CMT progression. Pharnext hopes this information will help researchers develop better treatments for CMT.
To learn more, visit the Vitaccess website.