Together we are stronger

Rare Barometer Voices Survey

EURORDIS-Rare Disease is carrying out the first European-wide survey on the impact of rare diseases on everyday life.

We invite you to participate and to support this survey by following this link:

This global survey is available in 23 languages and it is open to anyone from any country in the world who is living with a rare disease, as well their family members and carers. It will help to provide an up-to-date insight into the unmet treatment needs of people living with a rare disease.

The survey will take around 10 minutes to complete, and it closes on Tuesday 30 April.

Donations Accepted