EURORDIS-Rare Disease is carrying out the first European-wide survey on the impact of rare diseases on everyday life.
We invite you to participate and to support this survey by following this link: http://bit.ly/eurordis-survey
This global survey is available in 23 languages and it is open to anyone from any country in the world who is living with a rare disease, as well their family members and carers. It will help to provide an up-to-date insight into the unmet treatment needs of people living with a rare disease.
The survey will take around 10 minutes to complete, and it closes on Tuesday 30 April.