Three athletes living with Charcot-Marie-Tooth disease take on the DATEV Challenge Roth relay to fund CMT research, patient advocacy and awareness across Europe.
Charcot in CMT sounds a lot like Shark in English! These three athletes—two German women and an Italian man—live with CMT, a progressive inherited neuropathy that can cause disability. They will cover the same demanding relay distances while navigating the fatigue, muscle weakness and mobility challenges CMT can bring. Their non-profit fundraiser supports CMT research and the European patient community.
Germany | 3.8km Swim
Taking on the waters of the Main-Donau-Kanal, Annalena shows that fluidity and strength conquer nerve constraints. She lives with CMT1A.
Germany | 180km Bike
On her triathlon bike, Lena takes on 180 km of cycling, pushing through muscle fatigue caused by CMT. She lives with CMT1X.
Italy | 42.2km Run
Crossing the finish line, Silvio brings Italian passion to the marathon, defying muscle weakness every step. He lives with CMT2N.
Charcot-Marie-Tooth (CMT) disease is one of the most common inherited neurological disorders, affecting approximately 1 in 2,500 people. It causes damage to the peripheral nerves—the nerves that transmit information and signals from the brain and spinal cord to and from the rest of the body.
CMT can lead to progressive muscle weakness, particularly in the arms and legs, making a challenge like a triathlon relay a monumental feat of willpower and specialized training.
Learn more about CMTSupporting vital scientific research to find treatments and a cure for CMT.
Uniting European patient organizations to amplify the voice of those living with CMT.
Educating healthcare professionals and the public to ensure faster diagnosis and better care.
100% of your donation goes to ECMTF to support research and advocacy.
Every contribution moves the Shark Team closer to the finish.
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