“Together against CMT”
“Together against CMT” is the watchword of our initiatives to shape a better world for persons with Charcot-Marie-Tooth. The European CMT Federation, uniting most of the CMT advocacy groups across Europe, feels particularly called to stimulate and promote interdisciplinary cooperative research in the interest of all patients affected, while raising awareness for this neglected condition.
The ECMTF Awareness Campaigns
Since 2017, ECMTF has been running regular multilingual awareness campaigns in October to reduce the diagnostic gap and let CMT become more known and recognizable among general public and health professionals. Check the dedicated website and help us spreading the voice!
The European CMT Specialists Conferences
The European Charcot-Marie-Tooth Federation (ECMTF) is proud to organize the European CMT Specialists Conferences, bringing together leading researchers, clinicians, and patient advocates to advance the understanding and treatment of Charcot-Marie-Tooth disease.
The first conference, held in Paris in June 2023, set the stage for collaborative efforts in developing effective therapies.
Building on this momentum, the second conference will take place in Antwerp in October 2025, continuing to foster interdisciplinary cooperation and innovation in CMT research. These conferences are pivotal in uniting the CMT community across Europe and beyond, driving progress towards a cure.
PATIENT ADVOCACY GROUPS
PHARMACEUTICAL LABS & PRIVATE PARTNERS
PUBLIC PARTNERS & POLITICIANS
