In this interview Thomas speaks about the importance to increase awareness on CMT so that people get diagnosed rapidly (by the way the ECMTF CMT awareness campaign will take place next October); the efforts that can be made to manage CMT; the symptoms and the different types of CMT; the pharmacological treatment landscape, in particular the two investigational pharmacological agents being studied: PXT 3003 (Pharnext) and ACE-038 (Acceleron). To read the whole interview, follow the link: https://bit.ly/2LOmzrY
We are proud to announce that the Federation has joined EFNA, the European Federation of Neurological Associations!
EFNA is an umbrella organization well-established and recognized at European level by the European Administrative Structures.
Our membership represents a step forward in the achievement of our aims in CMT and similar neurological disorders.
Neurogene has enrolled the first patient in its natural history study on Charcot-Marie-Tooth disease type 4J.
The main goal is to hasten as possible the approval timeline for a future gene therapy medicine.
To know more about this future clinical trial, follow the link: https://bit.ly/2SysaTJ
Here a short summary of a study on pediatric surgery, carried out by the Australian researcher Joshua Burns.
The article is in Italian and it is available on the ACMT Rete news webpage:
Cypriot research, funded by the AFM-Telethon, provides proof of concept of the potential efficacy of gene therapy in a CMT 4C mouse model.
For more information in English visit:
Starting from June 22nd, for the entire duration of the event, the European CMT Federation will be joining the Pheripheral Nerve Society annual meeting as an exhibitor.
Visit us at our table to know more about the Federation and its Member Associations!
On June 22nd the first General Assembly of the ECMTF will be held! Is a magnificent opportunity to plan new future projects!
A great welcome to the Italian association AICMT !
AICMT Onlus deals with CMT since 1999, undertaking several projects and dealt with the various aspects that affect the lives of people with CMT, supporting patients and their families.
To know more about AICMT visit our dedicated page on this site, or go directly to: http://www.aicmt.it
You can contact AICMT at: firstname.lastname@example.org
Freephone: 800 180 437
As a member of EURORDIS, the European CMT Federation will take part at the next Membership Meeting that will take place in Bucharest from May 16th to May 18th. This will be an excellent networking opportunity to meet other patient advocated from around the world.
The European CMT Federation is glad to welcome CMT Austria!
CMT Austria was founded in 2003 and has currently about 200 members. They organise annual meetings that take place, each time, in a different federal state.
To know more about CMT Austria, visit our dedicated page on this site, or go directly to: http://www.cmt-austria.at
You can contact CMT Austria at: email@example.com