European CMT Federation

Together we are stronger

Bine ați venit la Asociația Neuro Move CMT!

The European CMT Federation  is glad to welcome the Romanian Neuro Move CMT Association!

Neuro Move CMT Association was established in June 2019, by a group of patients and specialists. Its aim is to meet patients’ needs diagnosed with Charcot Marie Tooth neuropathy, other similar neurological and locomotor disorders or other types of disabilities.

To know more about the Romanian Neuro Move CMT Association, visit our dedicated page, or go directly to: https://neuromovecmt.ro/

You can contact the Romanian CMT Association at: contact@neuromovecmt.ro

A Case Study

A rare case of CMT 1A associated with multiple scleroris.

You can read the article at the following link: https://bit.ly/2Z5Jsyc

An in-depth interview on Charcot-Marie-Tooth disease with K. Florian P. Thomas.

In this interview Thomas speaks about the importance to increase awareness on CMT so that people get diagnosed rapidly (by the way the ECMTF CMT awareness campaign will take place next October); the efforts that can be made to manage CMT; the symptoms and the different types of CMT; the pharmacological treatment landscape, in particular the two investigational pharmacological agents being studied: PXT 3003 (Pharnext) and ACE-038 (Acceleron). To read the whole interview, follow the link: https://bit.ly/2LOmzrY

 

European CMT Federation and EFNA

We are proud to announce that the Federation has joined EFNA, the European Federation of Neurological Associations!

EFNA is an umbrella organization well-established and recognized at European level by the European Administrative Structures.

Our membership represents a step forward in the achievement of our aims in CMT and similar neurological disorders.

A Natural History Study on CMT

Neurogene has enrolled the first patient in its natural history study on Charcot-Marie-Tooth disease type 4J.

The main goal is to hasten as possible the approval timeline for a future gene therapy medicine.

To know more about this future clinical trial, follow the link: https://bit.ly/2SysaTJ

ECMTF at the PNS Annual Meeting

Starting from June 22nd, for the entire duration of the event, the European CMT Federation will be joining the Pheripheral Nerve Society annual meeting as an exhibitor.

Visit us at our table to know more about the Federation and its Member Associations!

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