The European CMT Federation is glad to welcome the Romanian Neuro Move CMT Association!
Neuro Move CMT Association was established in June 2019, by a group of patients and specialists. Its aim is to meet patients’ needs diagnosed with Charcot Marie Tooth neuropathy, other similar neurological and locomotor disorders or other types of disabilities.
To know more about the Romanian Neuro Move CMT Association, visit our dedicated page, or go directly to: https://neuromovecmt.ro/
You can contact the Romanian CMT Association at: firstname.lastname@example.org
A rare case of CMT 1A associated with multiple scleroris.
You can read the article at the following link: https://bit.ly/2Z5Jsyc
Researchers have found that Schwann cells, a special type of cells, are capable of generating protective myelin sheath covers for the nerves at rates higher than earlier believed.
This finding may be significant in a peripheral nervous system disorder such as Charcot-Marie-Tooth disease.
Follow the link to read the article: https://bit.ly/2ZgnTtY
In this interview Thomas speaks about the importance to increase awareness on CMT so that people get diagnosed rapidly (by the way the ECMTF CMT awareness campaign will take place next October); the efforts that can be made to manage CMT; the symptoms and the different types of CMT; the pharmacological treatment landscape, in particular the two investigational pharmacological agents being studied: PXT 3003 (Pharnext) and ACE-038 (Acceleron). To read the whole interview, follow the link: https://bit.ly/2LOmzrY
We are proud to announce that the Federation has joined EFNA, the European Federation of Neurological Associations!
EFNA is an umbrella organization well-established and recognized at European level by the European Administrative Structures.
Our membership represents a step forward in the achievement of our aims in CMT and similar neurological disorders.
Neurogene has enrolled the first patient in its natural history study on Charcot-Marie-Tooth disease type 4J.
The main goal is to hasten as possible the approval timeline for a future gene therapy medicine.
To know more about this future clinical trial, follow the link: https://bit.ly/2SysaTJ
Here a short summary of a study on pediatric surgery, carried out by the Australian researcher Joshua Burns.
The article is in Italian and it is available on the ACMT Rete news webpage:
Cypriot research, funded by the AFM-Telethon, provides proof of concept of the potential efficacy of gene therapy in a CMT 4C mouse model.
For more information in English visit:
Starting from June 22nd, for the entire duration of the event, the European CMT Federation will be joining the Pheripheral Nerve Society annual meeting as an exhibitor.
Visit us at our table to know more about the Federation and its Member Associations!
On June 22nd the first General Assembly of the ECMTF will be held! Is a magnificent opportunity to plan new future projects!