The new R-Barometer H-CARE survey on the care experience of patients with rare or complex diseases is online! https://bit.ly/2NdTRjo
This international survey is available in 23 languages and is open to anyone living with a rare disease worldwide, as well as carers and family members. You can answer it until February 29, it will take no more than 10 minutes.
For more information visit the EURORDIS website: https://www.eurordis.org/rare-barometer-programme